A Disease That Has No Mercy
Muscular Dystrophy is a group of genetic muscle diseases that result in the increasing weakening and breakdown of skeletal muscles and eventually prevent movement over time. The causes are unknown however it is sure that they are in the very muscle cells. These disorders are characterized by progressive muscle weakness and destruction of muscle cells.
Duchenne Muscular Dystrophy (DMD) which represents the most severe form of the disease affects about one in 5,000 boys at birth. Initially, the boys have no symptoms. They stealthily start to show approximately from the age of 2 years. It begins with walking difficulties and the boys have to use a wheelchair after some time. The disease gradually weakens skeletal muscles. During adolescence, the respiratory muscles are going to be affected (such people need respiratory support) and eventually heart. In many cases, boys live up to 20 years.
We help people with muscular dystrophy to achieve more
There is no cure yet, but there are treatments available that effectively slow the progression of the disease. Maybe scientists will find a cure one day in the future. Those people will only have a chance if they remain alive until then.
We organize the largest motorcycle charity event in the Czech Republic and a public collection to benefit of individual people with muscular dystrophy who are associated at the Muscular Dystrophic Association In CZ and the Parent Project, and to support the activities of these organizations. We have donated already CZK 7,829,789 to help individual people with muscular dystrophy and helped to finance 391 projects during our first eleven years 2009 to 2019.